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Research Study: Prenatal Teting in Pregnancy After Infertility
From the National Institutes of Health:

We invite you to be in a research study sponsored by the National Institutes of Health and Johns Hopkins University.

Why is this study being done? To learn about how women who are pregnant after infertility think about prenatal testing. Prenatal testing is amniocentesis (amnio) or chorionic villus sampling (CVS).

Why am I being asked to be in this study? You can take part if you are a woman with a history of infertility and are now pregnant. To take part, you must have already decided whether or not you will have prenatal testing.

What is involved in this study? There is one survey that takes about 30 minutes to finish. The survey asks for your thoughts and feelings about infertility and prenatal testing.

What are the risks of the study? There are no known risks of taking part in this study. If it raises concerns about your pregnancy, infertility, or prenatal testing, please contact your doctor, nurse, midwife, or genetic counselor. If they have questions about the study, please have them call the researchers (contact information below).

Are there benefits to taking part in the study? There are probably no personal benefits to you from taking part in this study. It will tell us more about prenatal testing after infertility and maybe how to improve prenatal counseling for women who are pregnant after infertility.

Will I be paid? If you take part, you will receive $5 for your time.

Do I have to take part? You do not have to be part of this study if you do not want to. You can stop taking the survey at any time.

Who else will know that I am in the study? We don't ask for your name on this survey. No researcher will ever have access to your name. This study will not be part of any medical record. When we report our research results, it will be done anonymously. Any contact information you give the researchers so they can send you a survey will be destroyed after they mail it to you.

How do I take part? The survey can be done online or through the mail. To do it online, go to www.surveymonkey.com/s.asp?u=122581756727. The password is PrenatalTesting. To have a copy of the survey mailed to you, contact Colleen Brown, at 1-866-709-0479.

Problems or Questions? If you have any problems or questions about this study, or about your rights as a participant, please contact the researchers (contact information below). If you have any concerns about your pregnancy, prenatal testing, or infertility, please contact your doctor, nurse, midwife, or genetic counselor.

Thank you for your time and interest.

Colleen Brown, B.Sc.
Associate Investigator, Graduate Student
Genetic Counseling Training Program
Johns Hopkins School of Public Health/NIH
1-866-709-0479
brownc5@mail.nih.gov
Barbara B. Biesecker, MS, CGC
Primary Investigator
Genetic Counseling Training Program
NHGRI/NIH
301-496-3979

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